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September 23, 2019  
FORUMS: Read-Only

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Topic Title: Condensing Osteitis
Created On: 08/10/2005 05:48 PM
 
 02/05/2012 08:35 AM

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gabby2321

Hello everyone,[br][br]I have finally found someone who thinks he can help. I am seeing Dr. John Warner at Massachusetts general hospital in Boston. He did a contrast dye injection and CT and found I have a torn dick in my sc joint and arthritis forming on the end of my clavicle. He also said that a majority of C.O. Cases are incorrectly diagnosed. Have you all had bone scans? He did say that steroid injections are supposed to be very helpful... I've had 4 and none of them worked. So to more we are doing surgery to remove that disc and shave down the arthritist. He is very optimistic about the procedure and says he's done it a few times before and has had good results with it. Although he did say there are some risks, i had to have bllod drawn so they could have some on hand. I wouldn't do this procedure with just anyone though. If anyone is in the new England area, e-mail him. He is very willing to see patients with this diagnosis![br]http://bostonshoulder.com/[br][br]I will definitely keep you all updated. [br][br]-abby
 02/05/2012 07:56 AM

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cbjudge

Hi Natasha,[br]I'm sorry to hear you got the same bad news again.... that nothing can be done. I was actually told by one specialist that it was too dangerous to operate on the clavicle because of all the major vessels running behind it. He also said there was a possibility i could lose ALL use of the left arm if something went wrong. It seems we are going to have to just suffer through it. I'll keep checking on line to see if any more recent news turns up, if anyone has good news about the condition please post it here, as even one success story would help the rest of us keep positive.[br][br]Regards,[br]C
 01/31/2012 06:16 PM

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natashas

Hi All.[br][br]Well after finding a doctor that said he could help, he too turned and said. Can not do anything. He did reccommend a steriod injection and after reading Hibiscuouse last post, I am going to at least try that. I did hear something new though, apparently there are alot of large blood vessels around your Clavicle, and he siad if they operate I would DIE. Well thats a new one. Anyone else been told that. [br][br]I rang about 15 shoulder Dr's and 3 said they could help, but after $150 and a 5 minute consultation with one of them, and to be told cant do anything anyway, Im thinking its time to accept that I have this stupid thing, and nothing will fix it. As one doctor said, just deal with it.[br][br]Hibiscus - I too did celebrex 200 mgs. Did nothing for me at all. Tried all natural anti inflamatory's. No help either. And your pic is not showing up.[br][br]Sussnet - Good lucjk with finding out any info. If you do please share. All we can do is stay in contact with this site and hopefully one day one of us will come up with a cure (I can dream)[br][br]Stay positive X[br]
 01/30/2012 10:24 AM

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hibiscushouse

I don't see that the picture I posted a few months ago is showing up. I'm wondering if the moderator removed it. I'm sorry if they did, because I think it would be helpful to actually "see" some of the symptoms we are talking about. I have, personally, scoured the internet looking for any pictures of this myself. Any picture that I could compare the physical and visual symptoms that I was having. [br]Can anyone else see the picture I posted? Or is it just me and my computer that won't allow me to view it?
 01/30/2012 10:20 AM

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hibiscushouse

I had bilateral steroid injections directly into my SC joints about 6 weeks ago. Range of motion instantly improved and feels back to normal. The left SC that sticks out still gives me trouble, but my right side (that did not stick out, but was more debilitating than my left) felt normal again. But it's not gone, by any means. I still have swelling around the base of my neck, and it still aches and is really tight at times. Some days are better than others. I was really bad off before. Very limited with my activity and range of motion. In a lot of pain, with a lot of swelling and severe tightness. Never comfortable. [br]That hight of discomfort is gone, but frequently, with activity, I am reminded it's still there. I believe my clavicle is just anatomically changed, and will never articulate correctly again without discomfort. [br]My rheumatologist has started me on Celebrex 200 mgs. daily just to see if it helps with the neck swelling. I can't really tell if it has or not. Some days it's just a lot worse than others. And certainly worse after activity (even changing sheets on our beds). Frustrating!![br]I am scheduled for a repeat MRI of my clavicles today. He actually put on the request form "suspect osteitis condensans". That's huge for a Dr. to go out on a limb and actually say he thinks I have it. Hopefully, the radiologist will take a different view on how he reads my MRI based on this, and think outside the box a bit. [br]My husband's nephew is a interventional radiologist and I sent all my films to him after a discussion with him to "think outside the box". He spent a lot of time looking at them and learning more about C.O. and he sent them back to me saying he believes I have it as well. He ruled out everything else. [br]So, we shall see what my newest film says compared to the ones I had before. Still no definitive answers as to how to treat it, but I will say the steriod injections have helped.
 01/15/2012 06:12 PM

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susannet

Hello.[br][br]Im interested in information about this subject. Im 23 years old and im from Norway and I have the same problem (SC dislocation). The bone pops out and it affects my life in a very negativ direction. I cant lift anyting, and my neck is very sore and I have a lot of headache. The doctors here in Norway are very critical of any operation, and they dont give me any information or other tips about this subject.
 11/25/2011 11:47 AM

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cbjudge

Hello again hibiscushouse,[br][br]The injection was given into the sternoclavicular joint (right behind the ball) . It was fairly painful and i got absolutely no relief whatsoever from it.[br][br][br]Natashe,[br]Sorry to hear you're starting to get pain on the other side now. Iknow how frustrating it must be, and how helpless you must feel but hopefully we can get more info and some help. Your Nutrapath sounds interesting and worth a try, hope you feel better soon.[br][br]Good luck,[br][br]C
 11/07/2011 11:26 PM

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natashas

Hi All, [br][br]Hope you are well. I'm still searching for a DR who will look at the qeustionaire, It looks as though a Muscular Sleletal Specialist is interested so we will see how that goes. If there is anyone else who would like to fill out a questionaire I have prepared to take to whom ever I can get to listen, please feel free to contact me at [url=mailto:[email protected]][email protected][/url] [br][br]At the moment I am up to day 4 with little pain, mostly because I have restricted my self to doing pretty much nothing. I have had 3 really bad weeks after over doing it the garden, so rest was needed, for my sanity and also my poor family's. 3 weeks of little or no sleep starts to send you round the bend hey, haha. The bad news is that I now starting to get symptoms and pain in my other clavicle/shoudler. So thats just bloody lovely. Really have no idea how I will cope if the pain gets as bad as my left side. How can I function? I'm so scared right now.[br][br]Hibiscushouse I have not had the steroid injection, I cannot find anyone in Adeliade Australia that will do that, so I can't tell you much there sorry. I have taken Celbrex (anti-inflamatory) Panadeane Forte (for pain) also Endone. I do get some reife with the pain meds at night to help me sleep, but only if it's not to painfull. Once it gets to certain level of pain nothing helps until it is ready to go away.[br][br]I have seen a Nutrapath today and she belives that certain foods we eat cause inflamation ads is testing me to see which ones affect me. I will then avoid these foods and see if that helps. She has also put me on some natural anti inflmatory medicine, so I will get back to you all to see if any of this helps.[br][br]Take Care All
 10/30/2011 03:35 PM

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hibiscushouse

Cervical spondylosis at C5-C6 and C6-C7, with central disk bulge at C4-C5. I was sent to an interventional spine specialist and he did not think my problems were related to my cervical spine and did not suggest treatment for the cervical spine.[br]However he was interested in my clavicles and after reviewing the information on Condensing Osteitis, said he would be available to do whatever treatment my Rheumatologist recommended.[br]Looks like we are leaning towards a steroid injection, but the big question no one can answer is:[br]Into the joint or along the clavicle, near the joint?[br]Those that said you had a steroid injection into the joint, was it directly IN the joint or outside of it?
 10/26/2011 08:01 PM

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cbjudge

Hi hibiscushouse,[br][br]I've had an injection into the left SC joint, and found no relief whatsoever from it. [br]What kind of C spine issues? [br]I find that the stress and the position i have to adopt to protect my shoulder from pain, increases pain and stiffness in my neck and accross both shoulders.[br][br]No good news yet, sorry [br][br][br]C
 10/19/2011 03:17 PM

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hibiscushouse

[img=380x245]/uploadimage/close up - Copy.JPG[/img][br][br]This clearly shows the swelling I have been having around the base of my neck (like a ring). It isn't a good picture of the left S.C. lump though, but it's pretty pronounced.[br]
     
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