Hi everyone, especially the old timers Fitzroy, Frosty, Animal, Radiator, Elizabeth and Clumsy,
Just thought I would update you all, I have just had my 3 year anniversary with bilateral FS which is much better. Two weeks ago I went for a walk with my daughter, collapsed and ended up in AED. Apparently I had a seizure caused by something called an AVM (arterior venous malformation). In simple terms, a small tangle of blood vessels and veins in the brain. It isnt a tumour thank goodness. They put me on medication to prevent another seizure and the choices are: surgery to take it out, radiation or embolisation. Lots to think about. I will make an appointment with a neuro that specialises in AVMs then make an informed decision.
I believe my FS journey has given me strength to deal with this. For new people on this forum, read lots of old posts and draw information and strength from them. I know it helped me a lot in the freezing and frozen stages. It is a difficult journey and people dont really understand. BUT, it gets better, it really does. I am able to dry my hair now and get dressed properly for the first time in a couple of years. I found you have to adjust your mental attitude and it gets easier.
Anyway, enough rambling, hope you guys are all well and doing things you like doing warm regards