Reverse Shoulder Replacement

< REFRESH >
Topic Title: Reverse Shoulder Replacement
Created On: 05/21/2005 09:35 AM

Pages: [ 1 2 >> Next ]
View topic in raw text format.

Bookmark and Share

 05/21/2005 09:35 AM

Author Icon
kryckert1

Posts: 182

Has anyone had a reverse shoulder replacement done????


-------------------------
Kirsten
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
anurse1

Posts: 4

I am a 51year old female who has very severe damage to the head of humerus due mainly to having osteomylitis after birth. At 6 weeks old I had sites of the infection drained these were top of both the right and the left humerus. Over the years my shoulder joints have become more restictive and painful to the point that I am now about to embark on a Delta Reverse Shoulder Arthroplasty. I have no other choice other than living with more pain and further restricted movement.I will be embarking on this venture in 2 weeks time and will keep you posted if one would like any advice or information further to what they have read I will try to help. AC. UK
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
kryckert1

Posts: 182

I was passed over for the reverse shoulder replacement, and actually have no joint at all now. I have what is called a shoulder girdle, a synthetic tissue was put in place of my joint and the second total shoulder I had done. But, I would love to hear how your surgery goes and what your experiences were. Kirsten


-------------------------
Kirsten
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Carol51

Posts: 5

My dad had the reverse shoulder prosthesis done yesterday. We hope for reduction of pain. I can keep you posted how it goes. He is 83.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
bsmith1997

Posts: 3

My ortho. Dr. told me about this new prosthesis several months ago. Where do you live? Is your dad part of a study? I currently have both shoulders fused. However, the most recent one failed and my doc feels this is a good option for me. Of course, the thought of getting motion back is very exciting. I had a convention replacement many yrs ago and it had to be removed. I will look forward to more information and hope your dad does very well. I live in Tennessee, not exactly on the cutting edge of medicine. B. in TN
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
kryckert1

Posts: 182

Yes, keep me posted. I am still very interested in the reverse replacement, it might be an option for me down the road for my right shoulder. I hope your dad does well. Kirsten


-------------------------
Kirsten
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Carol51

Posts: 5

Today was a good day for Dad. Dr. Agarwal is very pleased that he's clear-thinking and came through the surgery well. He started therapy and is still stiff in his muscles, painfully sore at the shoulder. His left one had a repair to the rotor cuff nearly 3 yrs. ago, and he uses in with discomfort, but not as much as the right, which is the one that had the new surgery. Dr. says he already is using the right one more than prior to the surgery, but can't tell about improvement in pain level yet. Dr. says this is the FIRST one done in Indiana, where we live, and only 2nd in the country, as far as he knows. It was approved for the States in March of this year. The study reports online (that I've found) show really small groups tested. He's not part of a test, but Dr. Agarwal does shoulders almost exclusively at Central Indiana Orthopedics & Sports Medicine.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Carol51

Posts: 5

We are in Indiana. Dr. Vivel Agarwal of Central Indiana Orthopedics & Sports Medicine did the surgery. We are praying for a good outcome and are really, really hopeful that Dad will benefit from this procedure.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Carol51

Posts: 5

Oops, that would be Dr. Vivek Agarwal.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Carol51

Posts: 5

For those interested in my dad's progress, it is coming along VERY WELL. Less than 4 weeks since the surgery (reverse shoulder replacement), he is pain-FREE, with no medication. He can raise his arm 90* from his body, straight ahead. Going to therapy 3xweek, he is very encouraged! What a difference this operation has made!
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
anurse1

Posts: 4

Hi Everyone, Well I came outof hospital on Friday having had a reverse delta shoulder arthroplasty onMonday afternoon. 1st day post op I think I over did the exercises to big for my boots.I therefore suffered ery well on the 2nd day the physio is hard work but no pain no gain or so they say. I see my consultant in a weeks time and have to attend the hospital once a week for physio assessment. My clips come out on Thursday. We rigged up a pully system in the living room to give me chance at a better range of movement. Any questions please ask. will keep you posted on my progress Avril UK
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Cheryl17

Posts: 5

I am waiting for a surgery with Dr. Louis Bigliani to remove a failed total shoulder done last fall at Univ of Mass. Hosp. I have no shoulder function aat all. I have heard about various types of new prothesis now available and wonder who out there has had a second total shoulder with the newer materials. Has anyone had a surgery using the Johnson and Johnson reverse prosthesis? I am truly interested in any good or bad outcome and experience.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
kryckert1

Posts: 182

I have had 2 failed shoulder replacements. My first replacement was a hemi, and then a few months later I had to have the socket put in. After about 6 months, the socket came loose. I had a few surgeries to try and clear up the scar tissue, because I ended up with a frozen shoulder. During one of those surgeries, I developed a staph infection, so the prosthetic had to come out. After 7 months with no joint, I had a new humeral head put in, and then once again, had pain and had the socket put in a few months later. Unfortunately when the first socket was put in, the doctor drilled at an angle, so the second socket went in crooked too. After 7 months of extreme pain and absolutely no use of my arm I was fed up with the whole situation. I wanted the replacement out, and I didn’t want another one put in. I found Dr. Richard Hawkins; he was in Vail, Colorado, but now practices in S. Carolina. I met with him; he listened to my story, looked at all of my records and came up with 3 alternatives. A reverse shoulder replacement, a shoulder girdle, or remove the replacement and see if the pain goes away. We weighed which one we thought would be the best for me. He said he would not recommend putting another normal TSR back in, because most of the time, if the first replacement failed; the second one is going to fail too. That was his experience. I was tired of having surgeries, 30 of them in 8 years, I told him I didn’t want metal in my body anymore, so we went with the Shoulder Girdle. He took out my prosthetic, cement and cleaned the end of my humeral head and also the socket. He packed my humeral shaft with a synthetic tissue, and also sewed it over the end of my bone, where the humeral head used to be. He also sewed some of that synthetic tissue into the socket side as well. I don’t have a joint at all; the synthetic tissue keeps the humeral side from banging into the socket. I had the surgery done November 2003, by January 2004. I was no longer taking any pain medication, and could lift my arm mid body. I can now wash my hair with my left arm, my neck has to bend a little, and I can carry light items with that arm, and have not been in PT or on pain pills since January. I am not sure why your first replacement failed, but I would make sure you talk to the doctor you are seeing and ask him about the failure rate for second total shoulders and if the surgery is successful, how long they last. I was only 30 when I had my first TSR, and was very worried about the time a replacement would last. The synthetic tissue I have will last forever. After 31 surgeries, I am very happy to know that I will not need to be opened up again. If you have any questions, feel free to contact me. Good Luck, Kirsten


-------------------------
Kirsten
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Cheryl17

Posts: 5

I am very encouraged by reading the good outcomes some of you have experienced. My shoulder problem originated from a bicycle crash i suffered in 1987. The head of the humerus broke off and split into 4 pieces. The ortho staff at Univ. of Massachusetts Hospital reconstructed the joint using a plate, screws and wires. They felt i was too young for a prosthesis, and the shoulder prosthesis were not satisfactory then. The reconstruction was painful to heal from, but i did achieve a good range of motion and function. Last summer I noticed decreasing range of motion and more pain so I consulted a shoulder specialist in Boston who said the joint was eroded with osteonecrosis and I needed a total shoulder. He recommended a physician at U Mass. I had the total shoulder in Oct. of 2003 and never regained functon. An arthroscopic exam by a physician in San Diego revealed that all of the rotator cuff had been trashed. Possibly by debris left in the surgical site. He extracted bone chips, bone cement. He referred me to Dr. Louis Bigliani in NY City, whom he said was very familiar with rotator cuff deficient shoulders. I saw him last May and he said he would order a customized prosthesis from a company he has been in clinical trials with. I believe the company is Zimmer. I have heard nothing from him since, tho I've called a number of times. While waiting, I consulted Dr. Peter Millett in Boston (where I live) and he said he could replace my failed total with a reverse prosthesis made by J&J and used in Europe for years. He said I would need a bone graft first, to replace bone lost from the socket from the surgery last fall. I have to do something, as the current installed prosthesis is very unstable and moves all over. I very much appreciate the letter detailing your experiences. I realize now that I need to really pin down these surgeons on their success rates with 2cd total shoulders, and their plans for my surgery. I don't want another failure. I have heard about one woman who went to Europe for this surgery and had an excellent outcome, but this seems a real stretch unless one has relatives there. I have just two hopes, one for more function, and two for reduced or no pain.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
kryckert1

Posts: 182

You might want to contact Dr. Hawkins office and ask about the synthetic tissue. I think in your case, the reverse would be the only way to go, and would help stabalize your shoulder. If I were in your shoes, I would be asking myself a few questions. Do I really want the metal in my body for the rest of my life? You always run the risk of it coming loose, or wearing out, then you will have to have it replaced again. I don't think a doctor would do it a third time. The synthetic tissue would allow you to be pain free, have mobility with your arm, and never have another surgery again. I am excited about that, so just something to keep in mind. Dr. Hawkins has a clinic in S. Carolina now, I am not sure if that is closer to you, but I think it is closer than Europe. Good Luck, Kirsten


-------------------------
Kirsten
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Cheryl17

Posts: 5

Thanks so much for giving me Dr. Hawkins name and how he helped you. I will look into that. Can you now raise your arm in front of you? I think you mentioned that you could now wash your hair. I would be thrilled to be able to do that again. Now i have to bend way over and use the type of shower head that's on a flexible pipe, i.e., I have to get gravity to help me. Do you know anything about the Delta Reverse Prosthesis? Like what material it's made from? Do you know the name of the syntheticmaterial Dr. Hawkins used? Again, thanks for your help!! Cheryl
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
barbfromca

Posts: 6

Hello there, I read your post about having had the reverse shoulder replacement surgery and I wonder how you're coming along. I had a fall in late July and sustained massive rotator cuff damage with all tendons except for the teres minor being torn. My doctor, Dr. Dillingham, the 49ers doctor who operates at Stanford in Palo Alto, thought he had attached all of the tendons adequately but 6 1/2 weeks after surgery I still didn't have any ROM and still had some pain although nothing like it was before the surgery. It turned out that the operation was a failure and everything is still torn, along with the biceps tendon being out of place. Dr. Dillingham referred me to Dr. McAdams, the sports doctor for the Stanford Athletic team, and he and Dr. Dillingham wanted to do a deltoid patch where a sliver of the deltoid muscle is used over a patch from the thigh of a cadaver. When I heard that 50% of these tear after this surgery, I opted to have an arthroscopy with Dr. Wolf in San Francisco who is known for his success in repairing rotator cuff tears arthroscopically. After looking at the damage in surgery on December 16th, he tells me that there is no other option but to live with it as it is or have a reverse shoulder operation. I don't have too much pain anymore, but I cannot lift my arm above my chest or out to the side at all, and it is my dominant right arm. I have scheduled the surgery for February 7th but I'm hesitant because it's so new in this country and Dr. Wolf has only done four of them so far. I do know that the studies show good success rates in Europe where it has been done for about ten years. Anyway, I have also been trying to see Dr. Tom Norris in SF for an opinion but he's impossible to see. I could not get an appointment with him just to discuss the situation until March 24th. I am tired of the whole situation and want to be on the other side of all of this but also want to make a good decision about whether to have this surgery, with whom and when to have it. Any input about the doctors or the procedure would be appreciated. I am especially interested in what the pain was like right after the operation and also what the recovery period would be like. I'm in a new job and have already missed quite a bit of time with surgeries and pain. Thanks for responding. Barbara
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
Cheryl17

Posts: 5

Hello Barbara, I am in exactly that same situation, except it is my non dominant arm, but i can't even raise it to my chest level, only to about the level of a low counter. My scapula has risen on that side from the use of other muscles to try to achieve motion. I have seen a number of doctors - 1 here in San Diego, who is quite good, 2 in Boston and Dr.Bigliani at Columbia Presbyterian in NY City who is considered one of the best in the country. The Boston doctors tried to sell me on the reverse prosthesis, but Dr.Bigliani is adamantly against it as he feels it is still experimental, He said I am too young and too active and will tear it apart in 5 years. He said he'd never put the reverse currently available now in the USA into anyone under 70. He said the medical device company Zimmer is developing a different reverse prosthesis using trabecular metal (which your own bone can grow into) and it should be available in a year - and that I should wait for that. In a couple weeks, I'm going to the UK to consult with a surgeon there to find out if I can get a similar product and surgery there. I do know thy've been using both the reverse porsthesis and the trabecular metal there for a number of years. The doctor here in San Diego completely agress with this plan. He said shoulder surgeons are selling this reverse prothesis too eagerly. He has had seen failures and would not do it yet. He said once it fails you are at a dead end. Then you essentailly have no shoulder joint. I think you are wise to be skeptical and take your time. I know how very frustrating it is to be incapacitated.
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
barbfromca

Posts: 6

Hi Cheryl, Thanks so much for writing back to me. I'm very torn because I really want to put this whole thing behind me, but logic tells me not to jump into it when the operation is so new in this country. The only thing that makes me stop and wonder about that is the fact that it's been done for so long in Europe and from the studies I've read it seems that most people who have had the operation have reduced pain and increased range of motion. It just makes me awfully uncomfortable to know that the doctor who would operate on me has only done four of these operations. I'm a realtor and I know that after 18 years of experience and selling many houses, I am much better at what I do than when I first started. It's just logical that this would be the case. I'm very interested in what your doctors have said about the operation being too new. I have an appointment with another doctor on March 24th to talk about it (Dr. Tom Norris) and will keep you posted on what he says if I decide not to have the surgery on February 7th and go to see Dr. Norris for a second opinion. I found his name as one of the speakers at a symposium in Europe about the reverse shoulder replacement operation, so it seems that he is thought of as an expert. Let me know if you want me to forward any of the links to some of the info I have found when I researched the situation on the Internet. Thanks again for writing. Let's stay in touch. It really helps to talk to someone who is in the same situation that I'm in. Barbara
    REPLY     Quote     Top     Bottom    
 05/21/2005 09:35 AM

Author Icon
barbfromca

Posts: 6

Hi again Cheryl, I forgot to ask you what your age is. I am 58 years old. I expect to live for many years yet and definitely would not want to wind up in a situation where I have no other options. Barbara
    REPLY     Quote     Top     Bottom    

Bookmark and Share

Pages: [ 1 2 >> Next ]
View topic in raw text format.
< REFRESH >
 Register
 Login
 Main Page
 Shoulder News
Feature Story
Shoulder Technology
Real Life Recoveries
 Education Center
Conditions
Procedures
 Shoulder  Hero™
Dr. Evan Flatow:
Innovating Shoulder Surgery
About Heroes
 Community
Shoulder1 Forums
Patient Stories
Shoulder Journals
 Reference
Ask an Expert
FAQ's
Locate a Doctor
Reference Library
Anatomy
Video Library
 Bookmark Us
 
advertisement
Home About Us Press Jobs Advertise With Us Contact Us
advertisement
©1999- 2014 Body1 All rights reserved.
Disclaimer: The information provided within this website is for educational purposes only and is not a substitute for consultation with your physician or healthcare provider. The opinions expressed herein are not necessarily those of the Owners and Sponsors of this site. By using this site you agree to indemnify, and hold the Owners and Sponsors harmless, from any disputes arising from content posted here-in.