Condensing Osteitis

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Topic Title: Condensing Osteitis
Created On: 08/10/2005 05:48 PM

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 07/01/2009 11:11 AM

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tgrtrnr

Posts: 21

I did some reading on this- its very vague and falls under many names. My last MRI showed swelling of my clavicle in one spot. My physician did not hand out this particular diagnosis, but the evidence shows swelling throughout the shoulder and on the collarbone. Plus its affecting my AC joint. I have decided to have a resection of my collarbone to remove the swollen aspect to avoid continuing the use of pain meds and nexium.
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 07/01/2009 12:51 AM

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Ness

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Hi, I was diagnosed from a nuclear bone scan with condensing osteitis in my right clavicle & I experienced pain on that side for about 4 years. About a year ago, a second bone scan showed that I now have condensing osteitis in my left clavicle as well. The pain on my right side has eased so much so that I don't have any problems on that side, although the swelling in my collar bone is still apparent. Currently the left side gives me much pain & has done so for a couple of years now. Pain radiates from my collar bone into my shoulder & my neck. I have regular physiotherapy sessions & when it gets very severe, I sometimes end up having physio a couple of times a wk, which I have found has helped me immeasurably. Also I take anti-inflams (Naproxen) if it gets bad, but I prefer not to use these. If I do, I usually have to have Nexium for my stomach. I can understand the frustration of sufferers, as it initially took about 2 years & much expense & many different therapies & scans before I was diagnosed. If there is any other info out there including other therapies that seem to help, I'm always interested in hearing more. Also if there were any studies being carried out for this disease that anyone knows about, I would be interested in participating. Thanks.
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 12/06/2006 03:04 PM

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pinky06

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hello I was dianosed with this disorder 6 years ago and I am anti- inflammatory pills. There has been times when I stop taking the pills and its okay for a while but always comes back. The specialist (not very sympathetic) I saw said he had only seen one other case in a guy mid thirties and he had it for five years. Still waiting for mine to go away but no signs yet! On my tablets 3 daily diclofenac I can hardly feel it! But the tablets aren't that good for me- case on the news a few years back saying about heart attacks higher risk factor.
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 09/28/2006 02:51 PM

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Tazpurplesky

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I was just diagnosed with this disorder and am wondering what your staus. How long was your treatment and did it help?Thanks!
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 08/10/2005 05:48 PM

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Dena

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Hello,I went to the surgeon for pain in my right shoulder and a lump/bump on my right clavicle. The doc thought that there might be a tumor on my clavicle, but MRI showed no tumor. He told me there was inflammation in the bone and that he and the radiologist think I have a rare disease (16 diagnosed cases) called Condensing Osteitis of the clavicle. Seeing as I “fit” the symptoms and category for this disease, my surgeon is sending my MRI’s out of state to be reviewed by a bone/tumor specialist for “final” diagnosis. Does anyone know anything about how to treat this disease? I am in pain (clavicle and shoulder) but there isn’t much information on this disease. I am taking anti-inflammatory (Advil) pills and getting ready to do physical therapy and massage therapy. Please let me know if anyone has more information on this disease and if there is a cure or at least a way to relieve pain.Thanks!
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